Trials Using Patient Data: Research Partner Resource Hub

About this course

This course is designed for research partners - patients, carers, and members of the public who help shape how clinical trials are planned and run. It explains how trials can use patient data that has already been collected through NHS care, why this approach is becoming more common, and how research partners can use their voice to make sure data is handled safely, ethically, and in ways that work for the people the trials are meant to help. The videos have been co-produced with members of the Transforming Data for Trials Public Advisory Group, who helped decide the topics, shape the content, and record clips for the videos.

Intended audience

This course will be of interest to anyone acting as a research partner (also known as a public contributor, lay advisor, PPI representative, or patient partner) on a clinical trial that uses, or is considering using, patient data. It will also be useful to members of the public who are curious about how their health information is used in research, and to trial teams who want a resource to share with their public partners.