About This Course

Clinical trials are one of the most important tools in developing the effective treatments on which modern medicine and public health are built. As we collect more and more data during the care of patients, this routinely collected data becomes a valuable resource for clinical trials, but do patients understand how their data is used, or even that it is used at all?

The focus of this learning pathway is on both trial participants and members of the public, and covers the background to why trust is important and the current methods in use to communicate and engage participants and the public on the topic of routinely collected data in trials. Areas covered in the course are:

• Introduction to routine data in clinical trials
• Public trust in routine data – what is it, what drives it and how do we demonstrate trustworthiness?
• Public involvement and engagement for routine data trials – why, how, when and who?
• Communicating about routine data in trials – transparency and trustworthiness
• Funding and measuring impact

Please note that written transcripts are available for each video resource.

Intended Audience

This course is aimed at those who are interested in understanding the impact of public trust in the use of routinely collected data for clinical trials, whether they have experience of using these approaches or are interested in doing so in the future.

There is no sponsorship related to this course content.